Waiting at the RMH for the hospital shuttle. Few things about this particular house. It is the second largest in the world (behind NYC). Kids under 18 must be with parents at ALL times. There are washers/dryers with free detergent/dryer sheets and you must stay with the machines the whole time you are using them.

Label all food in the fridge but it has been known to "walk off" so far during our stay. The coke machine here has soda, oj, water bottles for 50 cents. Lunch and dinner are usually volunteer provided.

The neighborhood is ok during the day but iffy at night. CVS and a Kentucky Fried Chicken are within walking distance. (during the day)

The shuttle runs on the hour and at 20 minutes past the hour. But it's an ok walk to the hospital.

Arm bands are worn at all times. Blue for under 18 and yellow for over. Visitors to the house are confined to the front living room. House residents may not take them to their rooms or the dining area.

Second test out of the way

Macey went from nuclear medicine (starting the colonic transit) to motility (doing the "down bottom" manometry) and is now back in nucler med to eat her high protein breakfast and take her next scan. After that she goes back to her room and will eat lunch. Another scan this afternoon and then she should be done.

First test of the morning

Tests are over for the day

At 5 pm Macey finished up her test downstairs. She is working on her Incentive Spirometer each hour after the anesthesia. They did give her some Decadron during the surgery and I think that helped.




Now she's back in the room and has eaten alittle dinner. She has to be NPO again at 9 pmfor a test in the morning. Hopefully after that obe she will be released to the RMH for the rest of the week.

Eating her "test" meal

Procedure has started

Transport came and took Macey around 8:30. She hopped on the radiology table and they gave her Versed to calm her nerves. Then she started getting very starry eyed. The anesthesiologist gave her the hite sleep medicine (Propofol) and it stung. After about three good breaths she was asleep. They tucked her arms by her side and I went to the waiting room. It should take about 45 minutes.

More people come by

Dr Yeung is our GI Motility Fellow. Definitely is inquisitive. Questioned Maceys CVID but I explained her variant and why not all CVID's had a Tcell problem (which he seemed to think you had to have to be CVID).

Macey went to xray to get a KUB done to make sure the prep worked.







Then the floor nurse started her IV with just one stick.

The radiology report said she only had some gas but no noticeable stool. This means no NG tube is needed. Once I knew this I headed back to the RMH to get her a couple of Sprites (Nationwide no longer sells sugared drinks).

It never fails when you think you're safe the doctor comes by. Macey told him I was nearby and could be back quickly.

Fifteen minutes later Dr DiLorenzo was in the room with the Fellow and talking about what we wanted out of the trip and how we got there. Macey and I told him most of her strange GI history.

She will have to do an enema at 8 pm tonight and then NPO after midnight. We're still not sure
which case she is tomorrow.