Paperwork from Nationwide Children's is here

I received all the pre-admission paperwork from Nationwide Children's today.  She will be admitted on Monday morning, July 18 for labwork, an IV and an nasogastric (NG) tube.  On Tuesday she will go to surgery for several motility probes to be placed under general anesthesia.  She will then go to PACU and then go to the GI motility lab. 

Once she is there they will perform an antroduodenal manometry study, and a colonic manometry study.  This should take about 8 hours.  Hopefully on Wednesday she will be discharged to the Ronald McDonald House (which is supposed to be the 2nd largest in the world).  Thursday she will have outpatient procedures of a scintigraphy and gastric emptying test.  Friday she goes back to finish the scintigraphy and they said she should be done late Friday afternoon.  We have made reservations to fly home on Saturday just to be safe.  The lead GI doctor will meet with us after the tests are complete and go over preliminary results.  Then a more detailed report will be sent to her doctors at the NIH and in Atlanta.

Spring musical has come and gone

So the girls have finished the demanding schedule of the spring musical and Macey is already down with a cold and has a low grade fever this weekend. Both are ready for school to be out.













We have a date for Ohio. July 16 . One trip to surgery and several procedures/tests.