Monday, July 9, 2012

Earlier this year Macey's right knee developed several bumps and we weren't sure what they were. We took her to a dermatologist about 3 weeks ago but could only get in to see the PA.  I took several minutes to explain that attempts in the past were unsuccessful when it came to freezing something off Macey and I also told him at length about her immune deficiency.  The PA seemed like he was listening and then proceeded to burn each of these spots.

It caused Macey a good deal of pain but we are always open to the idea that something that works on most everyone might one day work on her.




Three weeks later and we have infected bumps. Staph no less. More than likely MRSA (sensitivities aren't back yet).  She is on Doxycycline 100 mg twice a day until we know if the bacteria is sensitive to it.

What aggravates me the most is that when I took her in last Thursday to check on these red, oozy, nasty looking things the PA tried to tell me that is what they are supposed to look like due to the freezing (three weeks later no less).  "It is the body's way of fighting the virus. The immune system is just doing it's job"

WHAT!!!!

He didn't remember us from Adam from the last visit and tried to tell me this drippy knee was normal.  I quickly (and firmly) reminded him who she was and alittle about her and he reluctantly agreed to culture it although he was SURE it wasn't infected.

Needless to say after I called and left a message today to ask about the culture the nurse in the office returned the call to tell me that yes it was infected.

All of this was happening while we were at the surgeon's office getting Macey ready for surgery on the 20th for 3 places on her left leg.  So now she will need pre-op doses of stronger antibiotics and a dose the morning of surgery for the staph in the other leg.



This makes Macey's 3rd staph infection this year.