Some days are better than others when it comes to the GI stuff. It usually is easier on the weekend than during the week because of the extra rest and calmer pace but lately even on the weekends there have been extra trips to the bathroom and pain. Steroids are still at an increased dose and I don't think we're going to be able to come down on them anytime soon. I'm going to ask at the next appointment in Atlanta if we can try another burst dose of IV steroids.
Spring musical tryouts are next week and with a good song in hand there will hopefully be a positive outcome.
