Day 6 consisted of the waiting game. to put it delicately we were doing a collection of "something" and that's pretty much it for the day. Around 2:30 the GI doctor and Immunologist rounded to do a final wrap up of sorts. There are several tests that are still not back and won't be until next week (when they'll be at a conference then). But what we do have back so far is this. When Macey first arrived a culture showed that she had a bacteria in her gut that might have been causing some of the pain. The test for the bacteria is done a different way at NIH than Macon or Atlanta so it's alittle more sensitive. She is on 2 weeks of antibiotics for this. Then the labs showed her nutrition was good and blood counts were fine. We have one lab to follow up with in Atlanta that shows she may have a problem with alpha 1 antitrypsin deficiency. A follow up clinic visit at Egleston and an office visit to Dr. Israel in Macon should help decide if this is a problem or not.
The slides from the nodule in her esophagus and the stomach and colon biopsies are not back yet. Plus they are going to look at certain chemicals released in the gut. So she came home on one new med and will stay on the steroid and possibly add back the Asacol for her IBD (GI at NIH thinks she needs to do this but
will write it up in his assessment so Dr. Israel will reorder it).
After the doctors came by Les and I headed to town to do something at the bank and eat dinner.
