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Monday, July 18, 2011
Day 3 - inpatient admission
Settled in the room and the nurses have done their assessment. Macey has on a regular blue hospital gown and is on her iPad. Now all we need is the Fellow to come by and write orders.
Location:Nationwide Children's Hospital
Saturday, July 16, 2011
Made it to Ohio
This morning started out with a 5 am start from home to the airport in Atlanta. Our plane was on time and we were straight on and settled in our seats.
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The flight took about an hour and a half and we touched down in Columbus just short of 10 am. We collected my bag which I had decided to check at the last minute and headed through a maze of elevators and tunnels to the taxi/shuttle stand at Port Columbus Airport.
Taxi service to the Ronald McDonald house here at Nationwide Children's runs about $40 each way. Alittle steep for me considering it is only 12 miles away. So we spent the first 15 minutes sitting down using my Hotspot on my iPhone to service Macey's iPad so I could figure out a better way and not lose my eyesight on that tiny phone.
Finally I decided on a route of COTA (Columbus Ohio Transit Authority) buses for $1.75. But right as I decided this the bus for the airport (which had been sitting there for 15 minutes) pulled out to make its run. It was 20 minutes before the next one was scheduled. Which makes it 30 minutes since we departed our plane and Macey was pooped. She napped in her chair (which had been brought along for good measure). The next bus came and since I am unfamiliar with the area and we had to switch buses I asked the driver if she and I would be safe at the bus stop where we switched for the 10 minutes between buses. He said since it was during the day yes. 10 minutes wouldn't hurt.
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The bus ride was adventurous and although a short route was definitely taking us through some of the less advantanges "apartments" in town. Finally we reached our transfer stop and proceeded across the street to the bus stop for our final leg. Ten minute went by and no bus. There was a very sweet lady there about my age who had a bicycle with her and struck up a conversation. Plus a gentleman about 50 or so who was very well versed on the COTA system. Once our bus missed it's time schedule he was on his cell phone with the COTA rep asking what gives. Their answer was that there was a gas leak and our bus had been rerouted but one was coming for us but would be late. Another 30 minutes passed and he called again and now was told it was under control and another bus had been dispatched to our location. Finally this bus arrives but of course with all the people who had been accumulating at the stops before us and it was slammed full. We had the two suitcases plus Macey's transport chair so they didn't look real happy when we got on. I got the chair up the isle and some sweet older man gave Macey his seat. Our bus driver defintely enjoyed his brake system and several explatives were heard from the back of the bus by passengers standing. Macey was very calm about it all (because it was very much a packed house with alot of unhappy people who had been waiting almost an hour at each of their stops only to be tossed around). She helped me follow the Google Map as we used it's Bus feature to get directions from our transfer bus to the Ronald McDonald House. I love this feature. When you get directions on Google Maps you have the choice of by car, bus or walking. By bus pulls the local transit schedule into your directions and lets you know when the next one is coming and you follow the blue dot as you advance up the road and come near your destination.
Once we approached the hospital (which is across the street from the RMH) we pulled the cord which sent an automatic signal to the driver that someone wanted off at the next computer announced stop. Otherwise he keeps driving. We jumped off and proceeeded across the torn up road (they are resurfacing) and into the front doors of the House that Love Built.
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We were given the house tour and I signed our paperwork about the rules of the house and our chore that was assigned to our particular room. Once we had our room card and pantry key we unpacked and went back downstairs. The house managers had grilled hamburgers/hotdogs and there were side dishes. Macey has started her bowel prep so she ate chicken noodle broth and a Sprite. Back upstairs later she started to read on her iPad but was quickly dozing. So we dressed her bed with the linen and she changed into sweats and has gone off for a well deserved nap.
The flight took about an hour and a half and we touched down in Columbus just short of 10 am. We collected my bag which I had decided to check at the last minute and headed through a maze of elevators and tunnels to the taxi/shuttle stand at Port Columbus Airport.
Taxi service to the Ronald McDonald house here at Nationwide Children's runs about $40 each way. Alittle steep for me considering it is only 12 miles away. So we spent the first 15 minutes sitting down using my Hotspot on my iPhone to service Macey's iPad so I could figure out a better way and not lose my eyesight on that tiny phone.
Finally I decided on a route of COTA (Columbus Ohio Transit Authority) buses for $1.75. But right as I decided this the bus for the airport (which had been sitting there for 15 minutes) pulled out to make its run. It was 20 minutes before the next one was scheduled. Which makes it 30 minutes since we departed our plane and Macey was pooped. She napped in her chair (which had been brought along for good measure). The next bus came and since I am unfamiliar with the area and we had to switch buses I asked the driver if she and I would be safe at the bus stop where we switched for the 10 minutes between buses. He said since it was during the day yes. 10 minutes wouldn't hurt.
The bus ride was adventurous and although a short route was definitely taking us through some of the less advantanges "apartments" in town. Finally we reached our transfer stop and proceeded across the street to the bus stop for our final leg. Ten minute went by and no bus. There was a very sweet lady there about my age who had a bicycle with her and struck up a conversation. Plus a gentleman about 50 or so who was very well versed on the COTA system. Once our bus missed it's time schedule he was on his cell phone with the COTA rep asking what gives. Their answer was that there was a gas leak and our bus had been rerouted but one was coming for us but would be late. Another 30 minutes passed and he called again and now was told it was under control and another bus had been dispatched to our location. Finally this bus arrives but of course with all the people who had been accumulating at the stops before us and it was slammed full. We had the two suitcases plus Macey's transport chair so they didn't look real happy when we got on. I got the chair up the isle and some sweet older man gave Macey his seat. Our bus driver defintely enjoyed his brake system and several explatives were heard from the back of the bus by passengers standing. Macey was very calm about it all (because it was very much a packed house with alot of unhappy people who had been waiting almost an hour at each of their stops only to be tossed around). She helped me follow the Google Map as we used it's Bus feature to get directions from our transfer bus to the Ronald McDonald House. I love this feature. When you get directions on Google Maps you have the choice of by car, bus or walking. By bus pulls the local transit schedule into your directions and lets you know when the next one is coming and you follow the blue dot as you advance up the road and come near your destination.
Once we approached the hospital (which is across the street from the RMH) we pulled the cord which sent an automatic signal to the driver that someone wanted off at the next computer announced stop. Otherwise he keeps driving. We jumped off and proceeeded across the torn up road (they are resurfacing) and into the front doors of the House that Love Built.
Wednesday, July 13, 2011
Sunday, July 3, 2011
Thursday, May 26, 2011
Paperwork from Nationwide Children's is here
I received all the pre-admission paperwork from Nationwide Children's today. She will be admitted on Monday morning, July 18 for labwork, an IV and an nasogastric (NG) tube. On Tuesday she will go to surgery for several motility probes to be placed under general anesthesia. She will then go to PACU and then go to the GI motility lab.
Once she is there they will perform an antroduodenal manometry study, and a colonic manometry study. This should take about 8 hours. Hopefully on Wednesday she will be discharged to the Ronald McDonald House (which is supposed to be the 2nd largest in the world). Thursday she will have outpatient procedures of a scintigraphy and gastric emptying test. Friday she goes back to finish the scintigraphy and they said she should be done late Friday afternoon. We have made reservations to fly home on Saturday just to be safe. The lead GI doctor will meet with us after the tests are complete and go over preliminary results. Then a more detailed report will be sent to her doctors at the NIH and in Atlanta.
Once she is there they will perform an antroduodenal manometry study, and a colonic manometry study. This should take about 8 hours. Hopefully on Wednesday she will be discharged to the Ronald McDonald House (which is supposed to be the 2nd largest in the world). Thursday she will have outpatient procedures of a scintigraphy and gastric emptying test. Friday she goes back to finish the scintigraphy and they said she should be done late Friday afternoon. We have made reservations to fly home on Saturday just to be safe. The lead GI doctor will meet with us after the tests are complete and go over preliminary results. Then a more detailed report will be sent to her doctors at the NIH and in Atlanta.
Saturday, May 14, 2011
Spring musical has come and gone
So the girls have finished the demanding schedule of the spring musical and Macey is already down with a cold and has a low grade fever this weekend. Both are ready for school to be out.
We have a date for Ohio. July 16 . One trip to surgery and several procedures/tests.
We have a date for Ohio. July 16 . One trip to surgery and several procedures/tests.
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